Do you know, my blog has been running for 2yrs and today, Calum (CEO of Ionic Balance) called me out that I have had the header of my blog spelt wrong!!!! I had Litertray instead of Littertray! anyway, Mr Liptrot, I have it fixed now I actually can not belive for 2yrs it had sat there with an obvious spelling mistake and no-one either noticed or told me LOL…slap on wrists for all of you *grrr*
I hope everyone is feeling good…I am bearing (somewhat) with the school easter break…counting down to Tuesday (5 sleeps) until they get back to school….I wouldnt have minded but the weather has been horrendous so hardly getting out.
I had a horrible chest infection the last 2wks too, which hasn’t helped matters. Not to mention sinusitis and an inflamed jaw apparently a flare.
I recently joined Lupus UK became a member, and also purchased a Lupus Awareness band (you can see it in the pic with my new Lupus tattoo in my last post) and also a Lupus Awareness Shopping tote. It’s often a conversational starter with the lady at the checkout who spots both and wants to know what Lupus is. I usually start with, Have you heard of Rheumatoid Arthritis (As I know most people have, but again most are misinformed about the disease) well its similar except it attacks organs and skin as well as the joints. Usually I am met with, but you are so young to get that…yes, yes I am! But again, its down to misinformation, or just pure ignorance, and the annoying fact that RA is not arthritis as we know it (why do they not drop that word!) There is no age limit as to when you get an autoimmune disease, you can be 1 month or 100yrs it can strike at anytime, no reason, no warning, it just happens.
So obviously on my quest to read all thing spoonie, I discovered there is a World Lupus Day on May 10th 2012, I have made the pledge to raise awareness, so come May 12th I will facebooking, twittering and blogging all things Lupus. I am lucky I have friends and family who understand…LOL they have no choice, but I am often met with people who question why my hands are deformed (when in flares state) whey I limp, in flare state, and these are complete strangers. But I dont get upset by the questions, they may not be touched by Lupus now, but who is to say they wont be in the future.